Spinal Cord Injury
Surveys & Petitions

This page contains a listing of open surveys, polls, and petitions that are directly associated with spinal cord injuries. Check back periodically, as this list changes often. If you have a survey/poll/petition and want it listed here for free, please contact me with its details.


Study: People who have difficulties with walking and who later develop certain types of cancer

Researchers at the Health Policy Research Center at Massachusetts General Hospital are interested in learning about the health care experiences of people who have difficulties with walking and who later in life develop certain types of cancer. They are running this study, which is funded by the National Institutes of Health. To thank you for being interviewed, we will give you a $50.00 gift card. To volunteer, you must:

  • Be between 21-74 years old
  • Speak English and live in the United States
  • Have had problems walking or no longer be able to walk for at least one year before your cancer diagnosis. Because of this walking problem, you must have had trouble getting around your home, taking a bath or shower, dressing, using the toilet, or feeding yourself
  • Have had one of these four cancers – colon or rectal, prostate, or ovarian cancer or non-Hodgkin lymphoma – within the last ten years
  • Have no other cancer history

Your participation in the interview is voluntary. The interview will take up to two hours, but you can stop at any time and not answer any question you don’t want to answer. We will audio-record the interview for us to review, but we will delete the recording with the project is over. Nothing will happen to your health care services you receive if you decide not to take part. We will keep your identity confidential and not connect your name to anything you say in the interview. We will not tell anyone that you were interviewed. We will use information from you and about 20 other people in write-ups about our study, but in a way that does not identify you.

Interested? Please contact Nicole Agaronnik at 617-724-0930 or email her at nagaronnik@mgh.harvard.edu. Please leave your name, email address and/or phone number so that we may contact you.


Are you a woman with a Spinal Cord Injury (SCI) over the age of 18?

The survey below was developed by Dr. Anne Berndl at the Accessible Care Pregnancy Clinic at Sunnybrook Health Sciences Centre, in Toronto, Canada. Dr. Berndl is a Maternal-Fetal Medicine specialist who focuses on pregnancy and physical disability. She has created this survey to address the lack of knowledge about reproductive and urogenital health and pregnancy in women with SCI, which may affect the care they receive or the healthcare choices they make.

This study was created with input from women with SCI and is funded by the Ontario Neurotrauma Foundation. It is completely anonymous. You may skip any questions that you do not feel comfortable answering.

If you are interested, please visit https://questionnaire.simplesurvey.com/f/l/sci-up-survey


Predictors of sexual pleasure, orgasm, and sexual satisfaction in men and women living with spinal cord injury

This research project aims at filling out an existing gap in the research literature dedicated to the sexuality of individuals living with a spinal cord injury (SCI). More specifically, the study’s goal is to further understand the role of various perceptual, sexual, psychological and neurophysiological factors involved in the perception of sexual pleasure and orgasm function for individuals living with an SCI, as well as in their overall sexual satisfaction. Research findings will guide the implementation of targeted interventions in the field of sexual rehabilitation for the SCI population. Participation involves completing an online survey at the following address: https://bso-validation.limequery.com/132198?lang=en. Participants will be entered into a raffle to win gift cards (Amazon.com) once the research project is completed. Further information can be obtained by contacting the research team at sexualitebm@gmail.com.


Neurogenic Bladder Research Study

The Neurogenic Bladder Research Group (NBRG) is conducting a nationwide survey to ask people with SCI how their bladder management affects their quality of life. Participants can enroll through our website and answer questions about their bladder management. After enrollment we will send them a $50 gift card and then another $50 if they complete more surveys over the year. Please tell us about your bladder!

Enroll today at http://www.nbrg.org/research/pcori/


Survey About Independence in Daily Living and Quality of Life After Spinal Cord Injury

The enclosed link below contains a survey that seeks your opinion/perspectives on which functions you (would) value most highly to improve your own independence in daily living and quality of life. It does so by asking you to complete a series of scenarios and questionnaires, ranking the relative importance in restoring different sorts of function (arm movement/hand grasping, walking, bladder and bowel control, sexual function) and/or treating the very common problem of neuropathic (nerve-related) pain against each other. This research forms part of a PhD study in which we hope to be able to compare views of people with SCI in the United States with Australia, extending previous work done in US.

Access the survey here: www.surveygizmo.com/s3/1880284/SCI-Health-Choices


Attachment, Hope, Work and Participation for Individuals With Spinal Cord Injury

A research team at the University of Wisconsin-Madison is looking people to participate in a study focused employment and community participation for individuals with spinal cord injury. The study is sanctioned by the University of Wisconsin, and has support from: National structure of NSCIA, Paralyzed Veterans of America and The Canadian Paraplegic Association.

Anonymous 20-30 minute survey: www.surveymonkey.com/s/SCI-Work-Participation