Spinal Cord Injury
Surveys & Petitions

This page contains a listing of open surveys, polls, and petitions that are directly associated with spinal cord injuries. Check back periodically, as this list changes often. If you have a survey/poll/petition and want it listed here for free, please contact me with its details.

SCI & Pregnancy Study through University of Michigan

Do you have a Spinal Cord Injury (SCI) and are actively planning a pregnancy, or in the process of making a decision about whether or not to get pregnant? Your feedback is needed on anew pregnancy decision-making tool for women with Spinal Cord Injury (SCI). Study participation is done from home and participants will be given a $40 check at the end of the study. You must be at least 18 years old, female, and have a Spinal Cord Injury (SCI) to participate.

For more information please contact The University of Michigan Program for Research on Women’s Health and Disability (U-M PROWHD) which is based within Michigan Medicine’s Department of Physical Medicine & Rehabilitation. You can call (734) 763-9374, send an email to SCIpregnancystudy@umich.edu or fill out a study interest form at https://mailchi.mp/c353d47d81b3/wlkf1ejhsc.

Development of an “on-demand, drug-induced, defecation therapy” for individuals with neurogenic bowel dysfunction

A biotech, start-up company seeks guidance regarding development of an “on-demand, rapid-onset, short-duration, drug-induced, defecation therapy” for individuals who suffer from neurogenic bowel dysfunction (i.e. an inability to defecate as desired due to neurological conditions such as spinal injury, multiple sclerosis, spina bifida, Parkinson’s disease, etc.).

The goal of the survey is to gather opinions on possible therapies that are more convenient, predictable, and effective than laxatives, stimulant suppositories, enemas, and manual bowel programs. The survey will take approximately 10 minutes to complete and your answers will remain anonymous. After answering questions about you and your health, a theoretical product profile of a drug to induce defecation is described to you, followed by questions about your preferences for the drug and routes of administration of the drug.

For more information or questions, please feel free to email: makatofiasc@yahoo.com

Take the survey: surveymonkey.com/r/SCIDT2021

Factors that Influence Physical Activity Levels for Males with SCI

If you are male, over the age of 18, and use a wheelchair as a primary mobility device, this research survey is for you! As a Northwestern graduate student, I am interested in the factors that influence physical activity levels for males with SCI. Unfortunately, there is a lack of research in this field of study, so my goal is to change that. The survey should take no more than 20 minutes, and all your answers are secured and private. Please click here to get started! Thank you in advance for helping to increase the research in this field.

Study: People who have difficulties with walking and who later develop certain types of cancer

Researchers at the Health Policy Research Center at Massachusetts General Hospital are running this study, which is funded by the National Institutes of Health. To thank you for being interviewed, we will give you a $50.00 gift card. To volunteer, you must:

  • Be between 21-74 years old
  • Speak English and live in the United States
  • Have had problems walking or no longer be able to walk for at least one year before your cancer diagnosis. Because of this walking problem, you must have had trouble getting around your home, taking a bath or shower, dressing, using the toilet, or feeding yourself
  • Have had cancer – except for melanoma – within the last ten years
  • Have no other cancer history

Your participation in the interview is voluntary. The interview will take up to two hours, but you can stop at any time and not answer any question you don’t want to answer. We will audio-record the interview for us to review, but we will delete the recording with the project is over. Nothing will happen to your health care services you receive if you decide not to take part. We will keep your identity confidential and not connect your name to anything you say in the interview. We will not tell anyone that you were interviewed. We will use information from you and about 20 other people in write-ups about our study, but in a way that does not identify you.

Interested? Please contact Nicole Agaronnik at 617-724-0930 or email her at nagaronnik@mgh.harvard.edu. Please leave your name, email address and/or phone number so that we may contact you.

Are you a woman with a Spinal Cord Injury (SCI) over the age of 18?

The survey below was developed by Dr. Anne Berndl at the Accessible Care Pregnancy Clinic at Sunnybrook Health Sciences Centre, in Toronto, Canada. Dr. Berndl is a Maternal-Fetal Medicine specialist who focuses on pregnancy and physical disability. She has created this survey to address the lack of knowledge about reproductive and urogenital health and pregnancy in women with SCI, which may affect the care they receive or the healthcare choices they make.

This study was created with input from women with SCI and is funded by the Ontario Neurotrauma Foundation. It is completely anonymous. You may skip any questions that you do not feel comfortable answering.

If you are interested, please visit https://questionnaire.simplesurvey.com/f/l/sci-up-survey

Neurogenic Bladder Research Study

The Neurogenic Bladder Research Group (NBRG) is conducting a nationwide survey to ask people with SCI how their bladder management affects their quality of life. Participants can enroll through our website and answer questions about their bladder management. After enrollment we will send them a $50 gift card and then another $50 if they complete more surveys over the year. Please tell us about your bladder!

Enroll today at http://www.nbrg.org/research/pcori/

Survey About Independence in Daily Living and Quality of Life After Spinal Cord Injury

The enclosed link below contains a survey that seeks your opinion/perspectives on which functions you (would) value most highly to improve your own independence in daily living and quality of life. It does so by asking you to complete a series of scenarios and questionnaires, ranking the relative importance in restoring different sorts of function (arm movement/hand grasping, walking, bladder and bowel control, sexual function) and/or treating the very common problem of neuropathic (nerve-related) pain against each other. This research forms part of a PhD study in which we hope to be able to compare views of people with SCI in the United States with Australia, extending previous work done in US.

Access the survey here: www.surveygizmo.com/s3/1880284/SCI-Health-Choices

Attachment, Hope, Work and Participation for Individuals With Spinal Cord Injury

A research team at the University of Wisconsin-Madison is looking people to participate in a study focused employment and community participation for individuals with spinal cord injury. The study is sanctioned by the University of Wisconsin, and has support from: National structure of NSCIA, Paralyzed Veterans of America and The Canadian Paraplegic Association.

Anonymous 20-30 minute survey: www.surveymonkey.com/s/SCI-Work-Participation