Spinal Cord Injury
Surveys & Petitions

This page contains a listing of open surveys, polls, and petitions that are directly associated with spinal cord injuries. Check back periodically, as this list changes often. If you have a survey/poll/petition and want it listed here for free, please contact me with its details.

Defecation therapy for individuals with neurogenic bowel dysfunction

Would you take 10 minutes of your time to provide your opinion if it meant eliminating inconvenient bowel programs? Please consider taking this short survey.

A company seeks your input regarding development of a fast-acting bowel movement therapy for individuals who have neurogenic bowel dysfunction (i.e., an inability to defecate when desired due to neurological conditions such as spinal cord injury, multiple sclerosis, spina bifida, Parkinson’s disease, etc.). The goal of the new therapy is to be more convenient, predictable, and effective than laxatives, stimulant suppositories, enemas, and manual bowel programs.

We value your opinion and ask you to complete this 10-minute survey that will help guide the design of new treatments for defecation disorders. The survey asks about medical conditions and if relevant, current bowel management practices. A proposed drug product is then described, followed by questions about preferences for its use and administration.

Participation is anonymous and completely voluntary. To participate in the survey, you must be 18 years or older and be an individual with neurogenic bowel dysfunction or a caretaker of someone experiencing neurogenic bowel dysfunction. If uncomfortable, participants may skip questions regarding their current bowel management program, but we request questions regarding basic background and questions about the proposed drug product be answered.

Data collected is for internal use only and will guide us in developing new therapies. For more information or questions, please feel free to email: makatofiasc@yahoo.com

To complete the survey please click the link: https://www.surveymonkey.com/r/4others

SCI & Pregnancy Study through University of Michigan

Do you have a Spinal Cord Injury (SCI) and are actively planning a pregnancy, or in the process of making a decision about whether or not to get pregnant? Your feedback is needed on anew pregnancy decision-making tool for women with Spinal Cord Injury (SCI). Study participation is done from home and participants will be given a $40 check at the end of the study. You must be at least 18 years old, female, and have a Spinal Cord Injury (SCI) to participate.

For more information please contact The University of Michigan Program for Research on Women’s Health and Disability (U-M PROWHD) which is based within Michigan Medicine’s Department of Physical Medicine & Rehabilitation. You can call (734) 763-9374, send an email to SCIpregnancystudy@umich.edu or fill out a study interest form at https://mailchi.mp/c353d47d81b3/wlkf1ejhsc.

Factors that Influence Physical Activity Levels for Males with SCI

If you are male, over the age of 18, and use a wheelchair as a primary mobility device, this research survey is for you! As a Northwestern graduate student, I am interested in the factors that influence physical activity levels for males with SCI. Unfortunately, there is a lack of research in this field of study, so my goal is to change that. The survey should take no more than 20 minutes, and all your answers are secured and private. Please click here to get started! Thank you in advance for helping to increase the research in this field.

Study: People who have difficulties with walking and who later develop certain types of cancer

Researchers at the Health Policy Research Center at Massachusetts General Hospital are running this study, which is funded by the National Institutes of Health. To thank you for being interviewed, we will give you a $50.00 gift card. To volunteer, you must:

  • Be between 21-74 years old
  • Speak English and live in the United States
  • Have had problems walking or no longer be able to walk for at least one year before your cancer diagnosis. Because of this walking problem, you must have had trouble getting around your home, taking a bath or shower, dressing, using the toilet, or feeding yourself
  • Have had cancer – except for melanoma – within the last ten years
  • Have no other cancer history

Your participation in the interview is voluntary. The interview will take up to two hours, but you can stop at any time and not answer any question you don’t want to answer. We will audio-record the interview for us to review, but we will delete the recording with the project is over. Nothing will happen to your health care services you receive if you decide not to take part. We will keep your identity confidential and not connect your name to anything you say in the interview. We will not tell anyone that you were interviewed. We will use information from you and about 20 other people in write-ups about our study, but in a way that does not identify you.

Interested? Please contact Nicole Agaronnik at 617-724-0930 or email her at nagaronnik@mgh.harvard.edu. Please leave your name, email address and/or phone number so that we may contact you.

Are you a woman with a Spinal Cord Injury (SCI) over the age of 18?

The survey below was developed by Dr. Anne Berndl at the Accessible Care Pregnancy Clinic at Sunnybrook Health Sciences Centre, in Toronto, Canada. Dr. Berndl is a Maternal-Fetal Medicine specialist who focuses on pregnancy and physical disability. She has created this survey to address the lack of knowledge about reproductive and urogenital health and pregnancy in women with SCI, which may affect the care they receive or the healthcare choices they make.

This study was created with input from women with SCI and is funded by the Ontario Neurotrauma Foundation. It is completely anonymous. You may skip any questions that you do not feel comfortable answering.

If you are interested, please visit https://questionnaire.simplesurvey.com/f/l/sci-up-survey

Neurogenic Bladder Research Study

The Neurogenic Bladder Research Group (NBRG) is conducting a nationwide survey to ask people with SCI how their bladder management affects their quality of life. Participants can enroll through our website and answer questions about their bladder management. After enrollment we will send them a $50 gift card and then another $50 if they complete more surveys over the year. Please tell us about your bladder!

Enroll today at http://www.nbrg.org/research/pcori/

Survey About Independence in Daily Living and Quality of Life After Spinal Cord Injury

The enclosed link below contains a survey that seeks your opinion/perspectives on which functions you (would) value most highly to improve your own independence in daily living and quality of life. It does so by asking you to complete a series of scenarios and questionnaires, ranking the relative importance in restoring different sorts of function (arm movement/hand grasping, walking, bladder and bowel control, sexual function) and/or treating the very common problem of neuropathic (nerve-related) pain against each other. This research forms part of a PhD study in which we hope to be able to compare views of people with SCI in the United States with Australia, extending previous work done in US.

Access the survey here: www.surveygizmo.com/s3/1880284/SCI-Health-Choices

Attachment, Hope, Work and Participation for Individuals With Spinal Cord Injury

A research team at the University of Wisconsin-Madison is looking people to participate in a study focused employment and community participation for individuals with spinal cord injury. The study is sanctioned by the University of Wisconsin, and has support from: National structure of NSCIA, Paralyzed Veterans of America and The Canadian Paraplegic Association.

Anonymous 20-30 minute survey: www.surveymonkey.com/s/SCI-Work-Participation