Spinal Cord Injury Research Studies

A listing of open observational type studies pertaining to spinal cord injuries. Note these studies are different than clinical trials as they do not test potential treatments. These studies are used to develop new ideas about SCI and how they might best be treated.

Check back periodically, as this list changes often. If you have a research study and want it listed here for free, please contact me with its details.

Florida Spinal Cord Injury Resource Center
A wide-range of research studies by the Miami Project and elsewhere.

Hunter Holmes McGuire VA Medical Center
A listing of spinal cord injury research studies currently being offered at the medical center located in Richmond, VA.

Rally by Partners HealthCare
A searchable listing of spinal cord injury studies at participating hospitals and specialty health care centers.

Developing a Patient-Centered Measure of Caregiver Relationships

We have developed a large set of items to address this topic and want to test these out with a group of 300 people with spinal cord injuries (SCI) who receive assistance from a caregiver. Afterwards, we will evaluate which items are the most useful and include these in the final measure.

Participating will involve completing an interview over the phone, which will take approximately one hour. You meet the basic eligibility criteria to participate in this study if the following are true:

  • You are at least 18 years old
  • You have had a spinal cord injury for at least 6 months
  • You receive at least 16 hours of caregiver service per week
  • You are able to speak and understand English
  • You do not live in a sub-acute transitional facility or nursing home

If you are eligible and participate, you will be compensated $35 for completing the interview.

To participate please email us at MF-Neilsen@umich.edu or call our team at (734)763-0623

IRB#: HUM00125787

A Novel Non-drug Treatment for Chronic Pain in Spinal Cord Injury (SCI)

Do you or someone you know suffer from chronic pain after a spinal cord injury? Researchers at the University of Washington are starting a new research study for chronic pain after spinal cord injury. Please see the details below for more about this study and how to participate.

Chronic pain affects many people with spinal cord injury (SCI) and can be musculoskeletal, neuropathic, or associated with spasms. Medications help, but rarely cure chronic pain. New research suggests that training in self-hypnosis plus cognitive therapy (HCT) can reduce chronic SCI-related pain. Self-hypnosis is a skill people can learn to enter a state of relaxed alertness and openness to suggestion. Cognitive therapy involves changing how the brain processes pain by changing thoughts about pain. Now we want to find out if people can learn HCT from a therapist via videoconferencing and if they experience significant pain relief. If videoconferencing-based HCT works, more people with SCI could benefit from this therapy. This is research study, so half of the participants will be randomly assigned to HCT and half to usual care. ALL participants will be asked to complete outcome assessments. No in-person visits are needed. Participants earn up to $60 for completing assessments.

You may be eligible for this study if you: 1) are at least 18 years old, 2) have been diagnosed and treated for SCI, 3) have chronic pain related to your SCI, 4) are able to read, speak, and understand English; and 5) have access to a web-camera & microphone through a computer, smartphone or other internt-connected device..

Contact us at 206-221-5688 or telepop@uw.edu for more information. If you choose to send an email, the University of Washington cannot guarantee confidentiality of the email.

Use of videoconferencing for spinal cord injury peer support during COVID-19

Because of COVID-19, many organizations providing peer support and mentoring for people with SCI have moved from face-to-face support to using videoconferencing. Monash University is conducting a study titled: Use of videoconferencing for spinal cord injury peer support during COVID-19 (coronavirus). The information gained from this study will assist organizations to establish guidelines and protocols for delivering peer support using videoconferencing in the future, to help them to best support their members.

If you have received peer support in this way, you can assist by filling out a short survey.

Community Wellness Study

The University of Washington Department of Rehabilitation Medicine is conducting a study to increase our knowledge about aging with a physical disability. The purpose of this study is to see if a telephone based health and wellness program can help individuals with long-term physical disability.

Participation in this research would involve talking on the phone with a wellness coach approximately once a month for 6 months or continuing your normal care with no phone calls. All participants will fill out 4 surveys over the course of 1 year that will take approximately 60 minutes each.

Participants will be compensated for their time and effort.

Seeking participants who:

  • Are ages 45-64
  • Have been diagnosed with a medical condition (such as Amputation, Spinal Cord Injury, or Multiple Sclerosis) that impacts daily living and/or quality of life.
  • Experienced symptoms before age 40

For more information, please contact us: 1-866-928-2114 or communityhealthstudy@uw.edu