Spinal Cord Injury Petitions & Surveys

Neurogenic Bladder Research Study

The Neurogenic Bladder Research Group (NBRG) is conducting a nationwide survey to ask people with SCI how their bladder management affects their quality of life. Participants can enroll through our website and answer questions about their bladder management. After enrollment we will send them a $50 gift card and then another $50 if they complete more surveys over the year. Please tell us about your bladder!

Enroll today at http://www.nbrg.org/research/pcori/

Survey About Independence in Daily Living and Quality of Life After Spinal Cord Injury

The enclosed link below contains a survey that seeks your opinion/perspectives on which functions you (would) value most highly to improve your own independence in daily living and quality of life. It does so by asking you to complete a series of scenarios and questionnaires, ranking the relative importance in restoring different sorts of function (arm movement/hand grasping, walking, bladder and bowel control, sexual function) and/or treating the very common problem of neuropathic (nerve-related) pain against each other. This research forms part of a PhD study in which we hope to be able to compare views of people with SCI in the United States with Australia, extending previous work done in US.

Access the survey here: www.surveygizmo.com/s3/1880284/SCI-Health-Choices​

Attachment, Hope, Work and Participation for Individuals With Spinal Cord Injury

A research team at the University of Wisconsin-Madison is looking people to participate in a study focused employment and community participation for individuals with spinal cord injury. The study is sanctioned by the University of Wisconsin, and has support from: National structure of NSCIA, Paralyzed Veterans of America and The Canadian Paraplegic Association.

Anonymous 20-30 minute survey: www.surveymonkey.com/s/SCI-Work-Participation

Systems for Wheelchairs Users

The University of Wisconsin- Madison is currently working on Assistive and Rehabilitation Technology. We are working on designing systems for wheelchairs users to increase their mobility/independence. Our main focus is to create a system where the wheelchair users can do daily activities with little help from a loved one. We would greatly appreciate if you could take the time to answer some questions that will help develop this system. We want to ensure that our product design incorporates what is needed, and does not have undesirable aspects. This questionnaire is for anyone that uses a wheelchair. A different survey is available for the loved ones of a wheelchair user. Your opinion will help create a new system to best meet your wants and needs!

Wheelchair User: www.surveymonkey.com/s/N85LMQG

Caregivers: www.surveymonkey.com/s/NYBCQGY

Perceived Barriers to Exercise Research

Do you have spinal paralysis and live in the United States? If so, you qualify for the following research survey.

The Reeve-Irvine Research Center is conducting a research study to determine more details about the perceived barriers to exercise experienced by men and women with spinal cord injuries. The information gained from this study will provide valuable information to scientists who study how exercise influences different aspects of health, specific to SCI. They need this information in order to better create exercise programs that a large majority of people with SCI can participate in and that are effective for their health. For more information please contact Dr. Kim Anderson at kanderso@uci.edu. All information will be kept strictly confidential.